#11 Chronic Illness Grief: The Pain & Losses No One Told You to Expect
A conversation on MS, grief, caregiving, and trusting God with the threads you can't see
π Episode Summary:
What do you do when your dreams for your life get rewritten β more than once? In this episode, I'm joined by my friend Brooke Bendell Stark, a writer living with multiple sclerosis, who opens up about the invisible losses of chronic illness and the picture that has carried her through it all β God as the Master Weaver, seated at the loom, turning our frayed threads and broken dreams into something beautiful we often can't see from our side of the tapestry. This is an honest, tender conversation about grief, chronic illness, and holding onto faith when nothing goes the way you planned.
In this conversation, we talk about:
- What it's really like to live with MS β the unpredictable symptoms, the loss of control, and learning to plan "in the moment" instead of far ahead
- The invisible losses that come with chronic illness β grieving plans, energy, and even small things like a note you meant to handwrite
- Trusting God as the Master Weaver β handing Him the broken threads and resting in the tapestry He's making, even when you can't see the pattern
β±οΈ Episode Timestamps:
0:00 β Cold open: what do you do when suffering comes in layers?
1:28 β Welcome to Joy in Suffering + introducing Brooke
2:41 β Brooke on their shared bond of Christ and chronic illness
3:19 β Brooke's story: six kids, foster care and adoption, her creative background
3:58 β The three types of MS, explained
5:30 β The "Master Weaver" metaphor: God at the loom
8:05 β What living with MS has looked like day to day
8:19 β The diagnosis that changed their mission field plans
11:04 β Learning to rest in Him instead of planning ahead
13:53 β Letting go of the illusion of control
14:44 β Surrender and stewarding her body well
17:06 β Trusting God's presence even when the day doesn't change
19:37 β The invisible losses of chronic illness
20:03 β Serving alongside her husband, and adjusting to physical limits
22:39 β Grieving the "small" losses no one else would notice
24:08 β Surrendering those losses and seeing what really matters
24:30 β Wrap-up + what's coming in Part 2
π Scripture:
Proverbs 3:5-6 (NIV) β "Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight."
β¨ Word of the Week: Surrender
Brooke's own word from this episode: "It's a surrender, yes. And we mistakenly battle the Lord with this β continually." Surrender isn't giving up. It's handing the threads you can't control to the One who can see the whole tapestry.
π Reflection Question:
Where are you still gripping tightly to something you were never meant to control? What would it look like to surrender that thread today?
π Signature Truth:
Your story isn't over.
God can bring purpose to your pain
And somehow- even here- joy still remains.
Mentioned in this episode:
A Quick Favor
"I'm looking for 3-5 women to hop on a short, no-pressure 15-minute call with me, just to hear a little about your journey with chronic illness, grief, or a hard season, and the words you would use to describe it. No catches, no upsells, just me wanting to understand my listeners better so I can serve you well. As a thank-you, I will send you my free faith quiz, "What Is God Growing in Your Life Right Now?" If you're willing, just send me a DM on Instagram and I will set up a time that works for you."